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Press Release

Promising Research by St. Baldrick’s-Stand Up To Cancer Pediatric Cancer Dream Team Funded in Honor of Tampa Child 

October 14, 2020

Press Release

FOR IMMEDIATE RELEASE

Promising Research by St. Baldrick’s-Stand Up To Cancer Pediatric Cancer Dream Team Funded in Honor of Tampa Child

Tampa, FL – The St. Baldrick’s Foundation, the largest private funder of childhood cancer research grants, is proud to announce Hope4ATRT, a St. Baldrick’s charity partner, will support lifesaving childhood cancer research being conducted by the St. Baldrick’s-Stand Up 2 Cancer Pediatric Cancer Dream Team. Hope4ATRT was established in honor of Zion Yamoah.

This Dream Team’s mission is to bring together two separate fields – genomics and immunotherapy – to find cures for the most hard-to-treat childhood cancers. Dream Teams are a program of Stand Up 2 Cancer, a division of the Entertainment Industry Foundation, and this pediatric team is supported by the St. Baldrick’s Foundation and ten participating research institutions.

The Dream Team has made ground-breaking progress in treatments for kids with cancer, by harnessing a child’s own immune system to fight cancer, especially leukemias. The Team now has an added focus on solid tumors. This year, their research in atypical teratoid rhabdoid tumor (AT/RT) specifically, is generously supported by a gift from Hope4ATRT, in partnership with the St. Baldrick’s Foundation. The research which honors the memory of Zion and all ATRT warriors is taking place primarily at Stanford University.

Zion was diagnosed with AT/RT, an extremely rare type of brain tumor that mainly affects children under age 3. Zion’s parents, Dr. Kosj and Jaymi Yamoah, were dismayed by the limited and outdated options of treatment. Zion passed away in July 2016 after a 15-month battle with AT/RT. His love of music and his bright spirit inspired his parents to start Hope4ATRT, a foundation dedicated to providing resources to families in the fight and supporting research for cures and treatments for AT/RT.

About Hope4ATRT
Hope4ATRT is a research entity of Out of Zion Inc, dedicated to directing resources and research to families in the fight. Hope4ATRT provides a single dynamic site where parents can go to find all the information they need to navigate their child’s diagnosis, to know exactly what to do, where to go for treatment, and what resources are available to them. Here at Hope4ATRT, we provide resources to parents, as well as support ATRT research. We have experts in the field that make sure parents have the relevant information they need and presented in a way they can easily understand.

To learn more visit www.hope4atrt.org, and connect on Facebook and Instagram.

Hope4ATRT is hosting a virtual ATRT Rally on November 7, 2020 at 6:30 p.m. to raise funds and awareness for ATRT research. To learn more about this event and how to support this work visit www.hope4ATRT.org/rally.

 

About St. Baldrick’s Charity Partners
Partners invest with the St. Baldrick’s Foundation in research to find less-toxic treatments and cures for all kids with cancer, together. To learn more about charity partners, visit the St. Baldrick’s Partners page.

About St. Baldrick’s Foundation
Every 2 minutes a child somewhere in the world is diagnosed with cancer. The St. Baldrick’s Foundation, the largest private funder of pediatric cancer research grants, is on a mission to give kids a lifetime by supporting the most promising research to find cures and better treatments for all childhood cancers. When you give to St. Baldrick’s, you don’t just give to one institution–you give to virtually every institution treating kids with cancer across the U.S. and beyond. As a leader in the pediatric cancer community, St. Baldrick’s works tirelessly to ensure that current and future children diagnosed with cancer will have access to the most cutting-edge treatment from the best leaders in the pediatric oncology field. Join us at StBaldricks.org and help #GiveKidsALifetime.


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Stefanie Tagliaferro

917-319-9764

info@hope4atrt.org

Media Contacts:

Michele Franco

626.792.8247 ext. 264

michele.franco@stbaldricks.org

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Press Release

Cure Kids’ Cancer Now! and Hope4ATRT Partner with the Children’s Brain Tumor Network to Fund Childhood Cancer Research 

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September 14, 2020

Press Release

FOR IMMEDIATE RELEASE

Cure Kids’ Cancer Now! and Hope4ATRT Partner with the Children’s Brain Tumor Network to Fund Childhood Cancer Research
 

Tampa, FL – Two local foundations have joined forces with the Children’s Brain Tumor Network (CBTN), the largest pediatric brain tumor biorepository on Earth, to fund cancer research, to find cures and better treatments for kids with cancer. Donations from patients’ brain tumor tissue and other biosamples allow scientists to carry out research that will enable them to better understand how to target and treat pediatric brain tumors. This collaborative resource is shared with researchers and scientists around the world.

 

The funds raised by Cure Kids’ Cancer NOW! Foundation (Tampa), and Hope4ATRT (Tampa) will provide much-needed support for children’s brain tumor research. Specifically of interest is the central nervous system atypical teratoid/rhabdoid tumor (AT/RT). AT/RT is a rare, fast-growing tumor of the brain and spinal cord. It usually occurs in children ages three years and younger. About half of these tumors form in the cerebellum or brain stem. The cerebellum is the part of the brain that controls movement, balance, and posture. The brain stem controls breathing, heart rate, and the nerves and muscles used in seeing, hearing, walking, talking, and eating, making AT/RT more challenging to treat. AT/RT may also be found in other parts of the central nervous system (brain and spinal cord).

 

Title and Amount of Funding: Total Awarded - $25,000

Out of Zion Award Program through Hope4ATRT Foundation - $12,500

Cure Kids’ Cancer Now! - $12,500

 

Purpose of Fund:

This fund is established to support Whole Genome Sequencing (WGS) of AT/RT. There are currently 11 AT/RT cell lines that need WGS. These funds are estimated to cover the cost to sequence all 11 tumor cell lines.

About Cure Kids’ Cancer Now!

Cure Kids’ Cancer Now! is a foundation determined to support families who are in the fight against kids’ cancers.

 

The Angel family formed Cure Kids’ Cancer NOW! Foundation in August 2016 in honor and memory of Emmi Grace Angel – their 5-month-old daughter who tragically died after only two short months of intensive treatment for AT/RT brain cancer. While Emmi Grace received the best possible care, her team was ill-equipped to treat her due to the outdated treatment options available. Knowing that more research dollars were needed to prevent tragedies like this from continuing, Cure Kids’ Cancer NOW! began with a primary focus of funding innovative research for less toxic treatment options designed specifically for children’s bodies.

 

According to Executive Director and Emmi Grace’s mother Monica Angel, “Yes, we know that our efforts can do nothing to bring back our child, but we work to do everything we can to save yours. Cure Kids’ Cancer NOW! and Hope4ATRT are aligned in our goal to provide meaningful research to ultimately cure AT/RT. We cannot unknow the pain of watching our children suffer so we work to ensure that no other children will have to endure such loss” 

 

Cure Kids’ Cancer Now! Foundation has 3 missions:

  • To fund research designed to treat kids’ brain cancers, especially AT/RT.

  • To send kids with cancer “Home for the Holidays” in honor of Emmi Grace’s birthday.

  • To educate about the truth of kids’ cancers.

 

To learn more visit  www.curekidscancernow.org, and connect on Facebook, Twitter, and Instagram.


About Hope4ATRT

Hope4ATRT was started to honor a young boy, Zion Yamoah. His dad, Dr. Kosj Yamoah, had this to say: “Having been trained in the field of both adult and pediatric oncology, I felt I would understand the complexity of treating this rare disease. But as parents, my wife Jaymi and I were both devastated and confused by the limited and outdated options we were offered. We had many questions about what to do, where to go, what trials were available, or what resources were out there. In the process of searching we quickly realized how few resources were available for this rare brain tumor.”

 

Zion passed away on July 7, 2016 after a 15-month battle with AT/RT. His love of music and bright spirit inspired his parents, their family, friends and community to continue to fuel research.

 

Hope4ATRT is a research entity of Out of Zion Inc., dedicated to directing resources and research to families in the fight. Hope4ATRT provides a single dynamic site where parents can go to find all the information they need to navigate their child's diagnosis, to know exactly what to do, where to go for treatment, and what resources are available to them. The organization has experts in the field that make sure parents have the relevant information they need, presented in a way they can easily understand.

Hope4ATRT provides resources to parents, as well as supports ATRT research. Partnering with organizations like the CBTN ensures research can happen even faster.

 

To learn more visit www.hope4atrt.org, and connect on Facebook and Instagram.

 

About Children’s Brain Tumor Network

Brain tumors are the leading cause of disease-related death in children; the CBTN won’t stop until every child is cured. Formerly known as the Children’s Brain Tumor and Tissue Consortium (CBTTC), the Children’s Brain Tumor Network is transforming cancer research by using data to discover better treatments and cures for children diagnosed with pediatric brain tumors. Breakthroughs are made possible through the teamwork and collaboration of doctors, researchers, and patients.

Since 2013, CBTN has collected over 45,000 biospecimen samples from more than 3,500 patient subjects. These samples allow researchers to identify better testing, treatments and outcomes for children diagnosed with pediatric brain tumors and other devastating diseases.

 

To learn more about the Children’s Brain Tumor Network, visit cbtn.org/about-us, and connect on Facebook, Twitter, or YouTube.


###

Stefanie Tagliaferro

917-319-9764

info@hope4atrt.org

Media Contacts:

Monica Angel

813-846-7633

monica@curekidscancernow.org

Stefanie Tagliaferro

917-319-9764

info@hope4atrt.org

Press Release

Hope4ATRT and St. Baldrick’s Foundation Partner to Fund Childhood Cancer Research

June 23, 2020

Press Release

FOR IMMEDIATE RELEASE

Media Contacts:

Michele Franco

626-792-8247 ext. 264

michele.franco@stbaldricks.org 

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Hope4ATRT and St. Baldrick’s Foundation Partner to Fund Childhood Cancer Research

Tampa, FL – The St. Baldrick’s Foundation, the largest private funder of childhood cancer research grants, is proud to announce that it has partnered with Hope4ATRT in Tampa, FL, to support the best research to find cures and better treatments for kids with cancer.  

 

The funds raised by Hope4ATRT will provide much needed support for investigation of brain tumor research. Specifically of interest to Hope4ATRT is central nervous system atypical teratoid/rhabdoid tumor.  Central nervous system (CNS) atypical teratoid/rhabdoid tumor (AT/RT) is a very rare, fast-growing tumor of the brain and spinal cord. It usually occurs in children aged three years and younger.  About half of these tumors form in the cerebellum or brain stem. The cerebellum is the part of the brain that controls movement, balance, and posture. The brain stem controls breathing, heart rate, and the nerves and muscles used in seeing, hearing, walking, talking, and eating. AT/RT may also be found in other parts of the central nervous system (brain and spinal cord).

 

Hope4ATRT was started to honor a young boy, Zion Yamoah.  His dad, Dr. Kosj Yamoah, has this to say: “Having been trained in the field of both adult and pediatric oncology, I felt I would understand the complexity of treating this rare disease.  But as parents, my wife Jaymi and I were both devastated and confused by such limited and outdated options, we were offered.  We had many questions about what to do, where to go, what trials were available, or what resources were out there. In the process of searching we quickly realized how little resources were available for this rare brain tumor.”

 

Zion passed away on July 7, 2016 after a 15 month battle with AT/RT. His love of music and bright spirit inspire his parents, their family, friends and community to continue to fuel research. Partnering with organizations like the St. Baldrick’s Foundation ensure research can happen even faster. To learn more about St. Baldrick’s partnership opportunities, visit StBaldricks.org/Partners, and connect on Facebook, Twitter, YouTube, or Vimeo.


About Hope4ATRT

Hope4ATRT is a research entity of Out of Zion Inc, dedicated to directing resources and research to families in the fight. Hope4ATRT provides a single dynamic site where parents can go to find all the information they need to navigate their child's diagnosis, to know exactly what to do, where to go for treatment, and what resources are available to them.  Here at Hope4ATRT, we provide resources to parents, as well as support ATRT research.  We have experts in the field that make sure parents have the relevant information they need and presented in a way they can easily understand. To learn more visit www.hope4atrt.org, and connect on Facebook and Instagram.

 

About St. Baldrick’s Foundation

Every 2 minutes a child somewhere in the world is diagnosed with cancer. The St. Baldrick’s Foundation, the largest private funder of pediatric cancer research grants, is on a mission to defy childhood cancers by supporting the most promising research to find cures and better treatments for all childhood cancers. When you give to St. Baldrick’s, you don’t just give to one institution–you give to virtually every institution treating kids with cancer across the U.S. and beyond. As a leader in the pediatric cancer community, St. Baldrick’s works tirelessly to ensure that current and future children diagnosed with cancer will have access to the most cutting-edge treatment from the best leaders in the pediatric oncology field. Join us at StBaldricks.org and help #DFYchildhoodCancers.


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Hope4ATRT Foundation

is a research entity of

Out of Zion, Inc.

Mailing Address: 

P.O. Box 6130   New York, NY  10150