HOPE4ATRT Founders

We are the parents of a sweet boy, Zion, whose life was cut short by a very rare and aggressive brain tumor known as Atypical Teratoid Rhabdoid Tumor (ATRT). Zion was diagnosed with ATRT just before his third birthday.

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As a doctor in the field of cancer research, I felt I would understand the complexity of treating this rare disease - but as parents, my wife Jaymi and I were devastated and confused by the limited and outdated options we were offered. We had many questions and felt lost on where to begin. We quickly realized how few resources were available for this rare brain tumor.