Live Interview with ATRT Mom

Amie Marzen is the mom of ATRT angel Madeline, and founder of Madeline's Mission.

A silly, sweet, loving child, Madeline spread joy to all who knew her. She was always quick to give a hug or share a silly song. Madeline was diagnosed with AT/RT three weeks before her 4th birthday and fought hard to stay with her family and friends, however she passed away just two short months after diagnosis.

As her family and friends began to grieve the loss of this bright light, it became apparent the need to help fill in the gaps in care surrounding the loss of a child. In her memory, Madeline’s Mission was formed to help share the kindness Madeline spread throughout her short life– and help provide hope to families surviving child loss. http://madelinemission.org/

For additional bereaved resources, visit: https://www.hope4atrt.org/bereaved-resources

#pediatriccancer #pediatriccancerawareness #atrt #atrtcancer #atrtangel #bereaved #grief #childloss #peertopeersupport

Live Interview with ATRT Parents

Rachel Krieger and Max Horn are the parents of ATRT warrior Ollie and the founders of Ollie’s Orchestra.

Ollie was diagnosed with ATRT in April 2019 at 9-months-old. Ollie is still fighting cancer and in active treatment.

The mission at Ollie’s Orchestra is to provide music to infants and children with a cancer diagnosis and their families with the goal of channeling the joy, stress relief, distraction and peace that music can elicit. One goal is to provide backpacks, guitars and other quality musical instruments to infants and children with a cancer diagnosis in inpatient and outpatient settings.

Visit their website for more information: olliesorchestra.org

#pediatriccancer #pediatriccancerawareness #atrt #atrtcancer #atrtwarrior #musictherapy

Live Interview with Lisa Ward

Lisa Ward is the mother of Jace Ward & co founder of Tough2gether Against DIPG/DMG.

Jace Ward who battled DIPG (Diffused Intrinsic Pontine Glioma) for two years before succumbing to the brain tumor at age 22. Jace Ward spoke frequently at the NIH, Congress, and to advocacy groups on the importance of patient ownership of genomic data, real time information concerning trials, and funding for DIPG, the deadliest pediatric tumor.

Tough2gether Against DIPG/DMG (an operating subsidiary of Arms Wide Open Childhood Cancer Foundation) collaborates with the DIPG/DMG, brain cancer and pediatric cancer communities to bridge gaps in research funding, access to trials, patient support, relevant information to families and advocacy. Tough2gether sees itself as a crucial piece of the puzzle to bring research to the bedside and children with DIPG/DMG to better treatments. tough2gether.org/

Tough2gether Against DIPG/DMG will be hosting a BrainStorm summit at CureFest on Friday – Saturday, September 23-24, 2022 (Washington D.C.). This summit will bring experts in the field of pediatric neuro-oncology and many opportunities for anyone wanting to learn more about the #1 disease-related killer of our children: Brain Cancer! Learn more and register to join at brainstormsummit.com/