Fighters

During his 14-hour brain surgery, he suffered a stroke, which left him unable to walk or talk or eat.

Abby has regained her spunky personality and is constantly looking to make others smile and laugh.

Daniel was happily running, climbing, and talking up a storm when his family noticed that something wasn't quite right.

Jonathan is full of energy and loves superheroes, boxing, family movie nights and playing with his cousins.

They were able to remove 100% of the tumor!
On March 24th, 2021 we found out that the tumor was ATRT.

Taylor has taught us so much about life than we could ever imagine. He continues to inspire us and challenge us.

He charmed every nurse, doctor, and attendant with his smile and bravery, showing everyone just how tough he really was.

His team wanted him to start treatments ASAP and discussed the two possible treatment paths...

We are incredibly proud of our little superhero and of all his achievements despite the mountains he has to climb every day.

We are exactly one year off treatment but the challenges don’t stop coming.

Asher is a happy 5-year old who loves his dog, books and Lightning McQueen. He continues to make forward progress on eating, speech and balance post-treatment.

Even though cancer has taken a lot from Gavin, the one thing that has not taken is his SMILE.

Shourya - means "The brave one". Shourya started his battle at 2 Years 10 months on March 27th, 2019.

Trey is a bright two-year-old who is full of energy and enjoys exploring the world. He loves singing, dancing, playing outdoors, football, and pizza.

Kinsley has endured a lot of side effects from her treatments, but will often say “today was the best day of my life”.

Caleb was just like any other 3-year-old. He loved playing outside, attending pre-school, and playing t-ball, soccer, and bowling.

Dr. Dhall at Children’s of Alabama let us know on January 27th that her biopsy diagnosis was ATRT, and to discuss the process to start ACNS 0333 protocol.

Eva is bright, clever, and mischievous. She makes us laugh everyday. She is the most resilient and determined person we have ever met.

Calynn became severely symptomatic on her 2nd Birthday. Her balance became very uncoordinated and she struggled to walk.

After completing her therapy, Rosie was NED. Sadly 6 weeks later, Rosie's cancer returned. 

Jace was diagnosed at 3 weeks old with a spinal tumor. Then found a secondary tumor on his kidney.

Vincent is 4 and currently in treatment for relapsed ATRT. He was just 4 months old when he was diagnosed with 2 brain tumors.

Mackenzie was diagnosed just weeks after her 2nd birthday, we found a frontal lobe tumor the size of an orange.

Isabella has now reached the 2 year post treatment mark which increases her survival rate. This has been a huge milestone for us.

Cayden’s journey began when he was just 11-months old. As an infant, Cayden was a happy and alert baby. As time progressed, he began to lose those milestones.

Ahmet's surgery and chemotherapy treatment went great with no tumors present at this time.

Kai is fighting so hard for this life. We stand beside him, we ask him to do the hard work. He has been fighting for his life, every day since he was 7 months old.

From his very first breath he has been full of spunk and personality. He has always been incredibly sweet natured, very social, charming, and cuddly.

Ava remains so strong, brave, and resilient, as we continue to fight this nasty beast!

Two days later, we were given a miracle and her surgeon was successful in a complete tumor resection; when all he was really going for was a biopsy. 

Michael’s joy and zeal for life is contagious. He’s always taking time to stop and smell the flowers anywhere he goes.

A biopsy was taken which showed she had a grade 4 cancer called ATRT.

Zayvian has now started school and is officially considered a survivor!

Emmy is now on an experimental maintenance drug, tazemetostat and had clean scans in July!

Harry was officially diagnosed a week after he turned 1. His surgery to remove the clementine sized tumor from his brain was two days prior to diagnoses.

Jade has had clear scans so far since the end of her treatment protocol which is the best results ever!

Oliver “Ollie” Lemieux was diagnosed with an ATRT tumor on his lower spine when he was 8 months old.