WHAT IS ATRT
We honor the incredible children that are on active treatment and post treatment for ATRT.
Daniel was happily running, climbing, and talking up a storm when his family noticed that something wasn't quite right.
Lincoln was diagnosed with ATRT on January 29th 2021 at 3 1/2 years old and spent his 4th Birthday in the hospital getting chemo.
Emmy is now on an experimental maintenance drug, tazemetostat and had clean scans in July!
Jace was diagnosed at 3 weeks old with a spinal tumor. Then found a secondary tumor on his kidney.
Mackenzie was diagnosed just weeks after her 2nd birthday, we found a frontal lobe tumor the size of an orange.
Seeing Caleb turn 5 after the past 2 years is incredible. He was diagnosed with ATRT 4 weeks after his 3rd Birthday and despite relapse last June he is still fighting.
Jonathan is an energetic and loving 6-year-old who loves superheroes, boxing, family movie nights and playing with his cousins.
Isabella has now reached the 2 year post treatment mark which increases her survival rate. This has been a huge milestone for us.
Cayden’s journey began when he was just 11-months old. As an infant, Cayden was a happy and alert baby. As time progressed, he began to lose those milestones.
Oliver “Ollie” Lemieux was diagnosed with an ATRT tumor on his lower spine when he was 8 months old.
Eva is bright, clever, and mischievous. She makes us laugh everyday. She is the most resilient and determined person we have ever met.
They were able to remove 100% of the tumor! On March 24th, 2021 we found out that the tumor was ATRT.
We are exactly one year off treatment but the challenges don’t stop coming.
Connor’s latest MRI confirmed his cancer is in remission! Connor has 6 months of maintenance chemo left on the SJATRT trial.
We pray everyday that Dakota may be a survivor of this beast, and are trying our hardest to never lose hope.
When Tori was diagnosed with ATRT at 9mo old, the doctors initially thought her best option was going to be to take her home and make her comfortable.
Asher is a happy 5-year old who loves his dog, books and Lightning McQueen. He continues to make forward progress on eating, speech and balance post-treatment.
Jade has had clear scans so far since the end of her treatment protocol which is the best results ever!
Calynn became severely symptomatic on her 2nd Birthday. Her balance became very uncoordinated and she struggled to walk.
Shourya - means "The brave one". Shourya started his battle at 2 Years 10 months on March 27th, 2019.
After being on Dexamethasone for a couple of months, Zayvian has started talking, sitting, and standing on his own again.
His team wanted him to start treatments ASAP and discussed the two possible treatment paths...
Ava remains so strong, brave, and resilient, as we continue to fight this nasty beast!
Caleb was just like any other 3-year-old. He loved playing outside, attending pre-school, and playing t-ball, soccer, and bowling.
From his very first breath he has been full of spunk and personality. He has always been incredibly sweet natured, very social, charming, and cuddly.
Harry was officially diagnosed a week after he turned 1. His surgery to remove the clementine sized tumor from his brain was two days prior to diagnoses.
Taylor has taught us so much about life in his 8 years than we could ever imagine. He continues to inspire us and challenge us.
Even though cancer has taken a lot from Gavin, the one thing that has not taken is his SMILE.
Vincent is 3 and currently in treatment for relapsed ATRT. He was just 4 months old when he was diagnosed with 2 brain tumors.