Vincent is 4 and currently in treatment for relapsed ATRT. He was just 4 months old when he was diagnosed with 2 brain tumors.
Vincent went through 13 months of intense chemotherapy including a stem cell transplant, endured 6 brain surgeries, over 200 days in-patient, over 100 blood transfusions, went into liver failure, developed hearing loss, lost the majority of the motor function on his left side, and has fought hard to live every day for the past 22 months. He was NED for 13 months but devastatingly relapsed with a new primary tumor just 5 months after ending treatment. He started chemotherapy again in March and will have his 17th brain & spine MRI the first week of May.
Vincent also has a germline mutation, Rhabdoid Predisposition Syndrome, that makes him more likely to develop rhabdoid tumors.
Update on Vincent's 4th Birthday: 2/12/22
Vincent has been doing incredibly well the past 18 months. He has made tremendous progress in his development and recently started walking independently. His personality is pure joy.
Unfortunately, a recent scan revealed very enlarged lymph nodes in his chest and his team is concerned that he may have developed a secondary cancer. This week he was admitted to the hospital for monitoring and a biopsy. Vincent will be celebrating his 4th birthday in-patient while waiting for biopsy results.
Follow his journey here: