Zayvian is a spunky 6 year old boy who was diagnosed with ATRT at 2 years old. After 2 brain surgeries, chemo, a relapse, 3 stem cell transplants, and 6 weeks of radiation Zayvian was declared NED in June of 2019. He rang the bell June 19, 2019. He then suffered radiation damage (inflammation in his brain) and lost all ability to walk, talk, and even sit up on his own.
After being on Dexamethasone for a couple of months he has started talking, sitting, and standing on his own again. We are currently working towards him walking again.
Update 11/28/2021 on Zayvian's 6th Birthday:
Zayvian continues to do awesome! He is getting ready to finally go to school next year! Zayvian just had an MRI that looked great so MRIs are moved to every 6 months now! He is just living his life and having a blast.
Follow Zayvian's story at: Facebook.com/ZealousZayvianWarriors