Taylor's journey started his 5th birthday. His first MRI showed 3 tumors in the skull, another MRI showed 2 more additional spots in his spine.
He was treated emergently. Started with chemotherapy less than a week after his crainiotomy. Started radiation within 2 days post op. He endured 9 months of chemotherapy and 36 doses of a combination of photon proton therapy.
He has a rare complication of treatment called Disseminated Necrotizing Leukoenchephalopothy. We continue to manage late effects that pop up.
Over all, this little man of ours has taught us so much about life than I could ever imagine. He continues to inspire us and challenge us.
Update for Taylor's 9th Birthday - July 2022
Taylor is currently inpatient in St. Louis Children's Hospital due to his 3rd Pulmonary Hemorrhage. But, he has made great strides in his recovery and is currently slated to get discharged on his birthday. Had he stayed, this would have been his 3rd birthday in 4 years on the PICU floor. Great job to Taylor for being the "Tuff" guy that he is and show everyone that he is NOT spending his 9th birthday in the PICU.