Noura

Noura's journey began in October 2018 when she was diagnosed at just three years old with metastatic left frontal lobe ATRT with leptomeningeal spread. She underwent extensive treatment, including a Gross Total Resection (GTR) of her tumor, a VP shunt, six weeks of high-dose whole brain and spine proton radiation, and five cycles of chemotherapy on the SJATRT trial.

She courageously completed her treatment in February 2020 and has maintained stable scans since completing radiation in January 2019. 

Now 5.5 years off treatment, Noura is truly living life to her fullest potential. While she navigates a host of long-term effects from treatment, her spirit shines brightly. She is a happy girl who loves people, always the friendliest, and quick to give a hug. Noura loves to dance and can sing literally any Disney song you can think of! She also enjoys doing puzzles. She shows love to anyone she meets and can put a smile on even the gloomiest faces.

Due to her cognitive delay, it's sometimes challenging for Noura to make and maintain friendships with kids her age, but everyone who knows her loves her dearly.

Noura's family shares, "We love our Noura. In Arabic, her name means 'light,' and she is our LIGHT in sometimes a very dark world. We are forever thankful that she is still here with us!"