In July of 2017, at the age of 8, Gavin was diagnosed with a type of brain tumor called ATRT. He began the ACNS 003 protocol at Children's Hospital of Orange County the following week.
After a couple of rounds of chemo, the tumor had shrunk enough so that he was able to have surgery to remove part of the tumor. He then had 3 more rounds of high dose chemo with stem cell transplants, followed by 6 weeks of proton radiation. He ended treatment on February 28th, 2018.
His MRI in July of 2018 showed a spot that they suspected was a recurrence, after a biopsy, it was determined to be radiation necrosis. He then underwent 40 hyperbaric treatments to treat the necrosis.
In February of 2019, Gavin had a routine MRI that showed a new tumor in the original tumor bed. He then had surgery to respect the tumor and it was confirmed that his cancer had returned. He had surgery to put a port in his head and also his chest. He began a yearlong chemo protocol called MEMMAT and finished on February 2, 2020.
Gavin has lost a lot during his battle with ATRT, including the use of his left hand, he has limited mobility and balance, his vision in his left eye and peripheral vision in both eyes are pretty much nonexistent. He has foot drop and he will face a lifetime of difficulties due to the harsh treatments that he has endured. Even though cancer has taken a lot from Gavin, the one thing that has not taken is his SMILE.
Follow his journey here: