Emmy was diagnosed with ATRT just one week after her first birthday.
She had a 40% resection at diagnosis and then start 3 rounds of induction chemotherapy. After her 3rd round Emmy had a complete resection and was deemed NED. She then completed 3 more rounds of high dose chemo and 30 session of radiation.
Emmy is now on an experimental maintenance drug, tazemetostat and had clean scans in July!
We pray this experimental route keeps her NED forever.