Lincoln was full of life and love! He loved trees, rocks, and taking walks…and Winnie the Pooh! Lincoln was an incredible fighter, and throughout treatment continued to smile, laugh, dance and sing!
Lincoln was diagnosed with ATRT on January 29th 2021 at 3 1/2 years old.
On January 24th 2021, Lincoln found an unlocked window on the 2nd floor and fell out of it. He was rushed to the closest trauma center but miraculously enough he didn’t sustain any injuries aside from a few surface abrasions from the bush he landed on. Because he was non-verbal and couldn't usually indicate an injury, they took further steps to get multiple CT scans which found an abnormality in the base of his brain. We were referred to get an MRI to further investigate. Just 4 days later he had the MRI.
A word no one wants to hear... Tumors, throughout the brain and down the spine...Lincoln was diagnosed with ATRT on January 29th, 2021, at 3 1/2 years old.
The next morning, Lincoln had a biopsy of the tumor lowest in his spine... Cancer.
The doctors couldn’t believe it. We had a full pathology within a few days, Rare ATRT Brain Cancer. Three days later he had a craniotomy to remove one of the biggest tumors in his brain (the only operable one) and upon recovery just weeks later started chemo before we even left the hospital from his surgeries.
Lincoln followed the ACNS0333 Protocol, and in September 2021, he had a stable MRI. But, by December 2021, Lincoln showed multiple new tumors.
Lincoln continued to fight and received another stable scan in October 2022. Unfortunately, barely a month later, they discovered two new tumors and that Lincoln had Hydrocephalus (fluid buildup in his brain causing pressure and head pain), as well as blood in his spinal fluid.
His family was able to comfort him at home in his final days. Just after 4pm on November 18, 2022, Lincoln peacefully took his last breath in the arms of Mommy, Daddy and big Brother James with his Auntie Sarah standing close by.