Hope4ATRT and St. Baldrick’s Foundation Partner to Fund Childhood Cancer Research

Tampa, FL – The St. Baldrick’s Foundation, the largest private funder of childhood cancer research grants, is proud to announce that it has partnered with Hope4ATRT in Tampa, FL, to support the best research to find cures and better treatments for kids with cancer.

The funds raised by Hope4ATRT will provide much needed support for investigation of brain tumor research. Specifically of interest to Hope4ATRT is central nervous system atypical teratoid/rhabdoid tumor.  Central nervous system (CNS) atypical teratoid/rhabdoid tumor (AT/RT) is a very rare, fast-growing tumor of the brain and spinal cord. It usually occurs in children aged three years and younger.  About half of these tumors form in the cerebellum or brain stem. The cerebellum is the part of the brain that controls movement, balance, and posture. The brain stem controls breathing, heart rate, and the nerves and muscles used in seeing, hearing, walking, talking, and eating. AT/RT may also be found in other parts of the central nervous system (brain and spinal cord).

Hope4ATRT was started to honor a young boy, Zion Yamoah.  His dad, Dr. Kosj Yamoah, has this to say: “Having been trained in the field of both adult and pediatric oncology, I felt I would understand the complexity of treating this rare disease.  But as parents, my wife Jaymi and I were both devastated and confused by such limited and outdated options, we were offered.  We had many questions about what to do, where to go, what trials were available, or what resources were out there. In the process of searching we quickly realized how little resources were available for this rare brain tumor.”

Zion passed away on July 7, 2016 after a 15 month battle with AT/RT. His love of music and bright spirit inspire his parents, their family, friends and community to continue to fuel research. Partnering with organizations like the St. Baldrick’s Foundation ensure research can happen even faster. To learn more about St. Baldrick’s partnership opportunities, visit StBaldricks.org/Partners, and connect on Facebook, Twitter, YouTube, or Vimeo.

About Hope4ATRT

Hope4ATRT is a research entity of Out of Zion Inc, dedicated to directing resources and research to families in the fight. Hope4ATRT provides a single dynamic site where parents can go to find all the information they need to navigate their child's diagnosis, to know exactly what to do, where to go for treatment, and what resources are available to them.  Here at Hope4ATRT, we provide resources to parents, as well as support ATRT research.  We have experts in the field that make sure parents have the relevant information they need and presented in a way they can easily understand. 

To learn more visit www.hope4atrt.org, and connect on Facebook and Instagram.

About St. Baldrick’s Foundation

Every 2 minutes a child somewhere in the world is diagnosed with cancer. The St. Baldrick’s Foundation, the largest private funder of pediatric cancer research grants, is on a mission to defy childhood cancers by supporting the most promising research to find cures and better treatments for all childhood cancers. When you give to St. Baldrick’s, you don’t just give to one institution–you give to virtually every institution treating kids with cancer across the U.S. and beyond. As a leader in the pediatric cancer community, St. Baldrick’s works tirelessly to ensure that current and future children diagnosed with cancer will have access to the most cutting-edge treatment from the best leaders in the pediatric oncology field. 

Join us at StBaldricks.org and help #DFYchildhoodCancers.