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Support, Connect & Learn alongside ATRT Experts and Families
Friday, November 14th ~ 6:00pm ET on ZOOM
WORTH THE FIGHT ATRT RALLY
ATRT families will rally together to hear from doctors on the frontlines of ATRT research and inspiration from family advocates.
This year's exciting lineup includes:
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Doctors on the frontlines of ATRT Research
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Dr. Susan Chi (Dana-Farber Cancer Institute and Boston Children’s Hospital)
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Dr. Alyssa Reddy (UCSF’s Benioff Children’s and PNOC's ATRT Research Group)
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ATRT Family Advocates
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Cindy Campbell (Ty Louis Campbell Foundation)
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Katelynn Smoot (Stand with Lilah)
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Breakout Sessions to Connect with other ATRT Families
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Pediatric Cancer Advocacy with Michael Henry (PBTF)
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Active Treatment & Social Storytelling with Katelynn Smoot (Stand with Lilah)
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Hope & Grief: A Session for Bereaved Families with Heather Held (PBTF)
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ABOUT ATRT
ATRT is a very rare, fast-growing tumor of the brain and spinal cord. The disease commonly affects children age 3 or younger but can also affect older children and adults. Learn more.
ABOUT HOPE4ATRT
Dr. Kosj and Jaymi Yamoah started Hope4ATRT after walking through their own cancer journey as a family. In 2015 their almost three-year-old son, Zion, was diagnosed with a rare and aggressive form of brain cancer known as Atypical Teratoid Rhabdoid Tumor (ATRT). Even as an oncologist himself, Dr. Yamoah was dismayed to learn how limited resources were for this rare disease. After the devastating loss of Zion, his parents were compelled to help fund innovative research, and be a resource for families in the fight against ATRT.
Hope4ATRT's mission is two-fold:
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to direct resources to parents of children with ATRT
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to raise funding for innovative research specifically for ATRT
To learn more visit Hope4atrt.org , and connect on Facebook , Instagram and YouTube.
